LEONIA, N.J. -- Leonia High School’s Butterfly Club is hosting a softball fundraiser between students and faculty on Monday to benefit an infant with a debilitating skin disease.
The event is one of several initiatives organized by the club to help Makenzie Cadmus, a 3-month-old girl suffering from epidermolysis bullosa, an illness whose victims lack a critical protein that binds the layers of skin together.
Without the protein, the skin tears apart, blisters and sheers off, leading to severe pain, disfigurement and wounds that never heal.
EB affects its victims inside and out, with blistering occurring all over the body, as well as in the eyes, mouth, esophagus and other internal organs.
Along with severe pain and disfigurement, the disease can cause early death from an aggressive form of skin cancer.
It is estimated that EB affects approximately 30,000 people, and is not specific to any ethnicity or gender.
The fundraisers held by the Butterfly Club have raised money for Makenzie’s bandages, special diapers and other items that insurance does not cover.
The softball event begins Monday at 3 p.m. at the high school and will include hot dogs, snacks, t-shirts and drinks for sale.
All proceeds will go toward Makenzie’s medical needs.
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