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Leonia Teen Aids Sister Battling Rare Genetic Disorder

Delsey Capil, left, with her sister Nadine Capil, who is battling a rare genetic disorder that causes tumors in her eyes.
Delsey Capil, left, with her sister Nadine Capil, who is battling a rare genetic disorder that causes tumors in her eyes. Photo Credit: Delsey Capil
Nadine Capil of Leonia recovers from treatment in style.
Nadine Capil of Leonia recovers from treatment in style. Photo Credit: GoFundMe

LEONIA, N.J. — Myra Capil of Leonia sat at her computer researching the symptoms her teenage daughter was experiencing.

Nadine had complained of having flurries, or floaters, in her vision. The key term brought up Von Hippel-Lindau Syndrome, a rare heredity condition which causes blood vessel tumors in the brain, spine, and eye.

But Myra kept scrolling — that one was too rare.

But, in January 2014 — two months after Nadine’s 18th birthday — Nadine was diagnosed with VHL.

After years of countless treatments and surgeries, Nadine, 20, has finally returned to work.

But her sister, Delsey, 16, remembers the very day things took a turn for the worst.

“It was on July 11 last summer,” Delsey said. “She texted my mom in our family group chat and said her eye was acting up again.”

Delsey felt helpless. As did Nadine’s friends and family.

“I really felt like I needed to help, and people were coming to us asking how they could help either financially or emotionally” Delsey told Daily Voice.

“I didn’t know what to tell them.”

In an effort to aid her ailing sister, Delsey launched a GoFundMe page , which has since raised more than $2,600.

Nadine may need a third surgery next summer but until then, Delsey hopes her sister and family will stay strong.

“She’s generally a happy, bubbly person and has remained positive throughout the summer — to my amazement,” Delsey said. “As a whole we’ve all just been doing really well in spite of what’s been going on.

“Hopefully it stays that way.”

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